Lymphoedema United – You Are Not Alone Anthology

Date of Publication:  October 2023
Author/s: Matt Hazledine and Amy Rivera

Description:
Living with lymphoedema can be challenging, and the journey to diagnosis and care is often filled with obstacles. But, this anthology is a beacon of hope. Featuring personal stories from 34 amazing individuals from 14 countries, it offers valuable tips for those living with lymphoedema, as well as reassurance and support.

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Practice points for lymphoedema care in low- and middle- income countries developed by nominal group technique

Date of Publication:  July 2023
Author/s: Eric Torgbenu, Tim Luckett, Mark Buhagiar, Jane L Phillips

Description:
BMC Health Services Research, 
Lymphoedema is a common, distressing, and debilitating condition affecting more than 200 million people globally. There is a small body of evidence to guide lymphoedema care which underpins several lymphoedema clinical practice guidelines developed for high-income countries (HIC). Some of these recommendations are unlikely to be feasible in low-resource settings.
Aim: To develop practice points for healthcare workers that optimise lymphoedema care in low- and middle-income countries (LMIC).

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Chronic Oedema

Date of Publication: November 2021
Author/s: International Lymphoedema Framework

Description:
Journal of Wound Care. 2021; 
In three open access paper published by the Journal of Wound Care, readers are provided with insights in the relationship between wounds and chronic oedema, ILF’s international survey to explore outcome measures in chronic oedema and lymphoedema, and finally an international study to explore the challenges faced by the medical device industry in the development of compression products and reimbursement.

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Genital Oedema

Date of Publication: November 2021
Author/s: International Lymphoedema Framework

Description:
Journal of Wound Care. 2021; 30(Sup 2)12:1-40
This Journal of Wound Care supplement on genital lymphoedema addresses this under-reporting of genital oedema by using a holistic framework through three papers written by authors from five different parts of the world and presenting research from different professions working in varied specialist areas.

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Lymphatic Research and Biology LIMPRINT Special Edition Part 2

Date of Publication: October 2021
Author/s: International Lymphoedema Framework

Description:
Lymphatic Research and Biology, Volume 19, no 5, 2021
In nine open access articles readers are provided with more insights on LIMPRINT, ILF’s international study on chronic oedema. This includes knowledge gaps surrounding chronic edema, the cost and quality-of-life implications of decongestive therapy for these patients, the international perspective on predictive factors for the therapeutic responses to intervention, the impact of bariatric disease, incidence of cellulitis in relation to specialist access, and extensions of the prior insights into the pediatric experience.

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Journal of Lymphoedema

Date of Publication: Latest issue June 2019
Author/s: ILF/Wounds International

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Lymphatic Research and Biology LIMPRINT Special Edition Part 1

Date of Publication: April 2019
Author/s: International Lymphoedema Framework

Description:
Lymphatic Research and Biology, Volume 17, issue 2, April 2019 Special issue on ILF’s LIMPRINT study results presented in 17 open access articles

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Consensus Statement on the Chronic Oedema –Lymphoedema Interface

Date of Publication: June 2015
Author/s: National Lymphoedema Partnership

Description:
Consensus Statement on the Chronic Oedema –Lymphoedema Interface (National Lymphoedema Partnership, 2015)

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Compression Therapy: A position document on compression bandaging

Date of Publication: 2020
Author/s: Christine Moffatt, Hugo Partsch, Jan Schuren, Isabelle Quéré, Margaret Sneddon, Mieke Flour , Anna Towers, Saravu R Narahari, Terence J Ryan, Kuthage Viekananda, Pierre Brantus.

Description:
This position document on compression bandaging is the first of a series of in-depth documents on aspects of lymphoedema practice and contributes to the second edition of the best practice document. It draws together the current evidence base supporting compression as well as celebrating the wealth of international variation in the way in which compression bandaging is used in clinical practice. Most importantly, it includes how the challenges of bandaging are tackled in resource-poor countries such as India, a feature that was not present in the first edition. The document has been supported by an international editorial board and peer review that includes experts in compression therapy to ensure that, in addition to presenting the state of the art in compression, it is clinically useful for practitioners.

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Surgical Intervention: A position document on surgery for lymphoedema

Date of Publication: 2012
Author/s: Janice Cormier, Robert Damstra, Håkan Brorson, Hiroo Suami, David Chang.

Description:
This position document on the role of surgery in lymphoedema management forms part of the second edition of the International Lymphoedema Framework (ILF) best practice document. The ILF are very proud that this document is based on a systematic review of surgery in lymphoedema management undertaken by the American Lymphoedema Framework Project; the chapter by Dr Janice Cormier summaries their findings and recommendations. This approach follows that of the first edition of the best practice document that began with Cochrane systematic reviews of physical therapies.

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Lymphoedema Frameworks: The way forward

Date of Publication: 2010
Author/s: ILF

Description:
The International Lymphoedema Framework (ILF) was established as a charity in the UK in 2009. Its aim is to improve the management of lymphoedema and related disorders worldwide, by sharing expertise and resources and supporting individual countries to develop a long-term strategy for lymphoedema.

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Care of Children with Lymphoedema

Date of Publication: 2010
Author/s: Isabelle Quéré, Christine Moffatt

Description:
This focus document provides practitioners with an overview of childhood lymphoedema: the causes, presentations, and approaches to management.

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Elements of an Effective National Patient Organisation

Date of Publication: 2010
Author/s: ILF

Description:
The LSN was asked to write our ‘story’ to inform and encourage international groups within the ILF community. This is not to imply that we know it all, always get it right, or that we have completed our work, as none of these things are true. But, what is true is that the hard work, dedication and expertise of everyone involved in the organisation since it began in 1991 has seen the LSN grown from a group of seven members with big ideas, to the UK’s leading lymphoedema charity, still with big ideas!

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Compression Hosiery in Upper Body Lymphoedema

Date of Publication: 2009
Author/s: CJ Moffatt, G Krimmel, C Carati, B Gannon, N Piller, K Johansson, D Doherty, A Williams

Description:
This template follows on from the first document, Compression hosiery in lymphoedema (Lymphoedema Framework, 2006a) that recognises the central role that compression garments play in the treatment of lower limb lymphoedema. Together they provide a comprehensive, yet practical guide for practitioners who are managing patients with lymphoedema.

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Developing a Lymphoedema Service

Date of Publication: 2007
Author/s: CJ Moffatt, PA Morgan, T Hill, R Davies, MC Sneddon, V Keeley, PJ Franks

Description:
In many countries, the provision of care for patients with lymphoedema is inadequate, often as a result of under-recognition of this chronic debilitating condition of highly diverse aetiology. Historical influences on service development have in some cases resulted in inequity for certain groups of patients and in approaches to healthcare provision that are not necessarily relevant today. Growing recognition that lymphoedema has causes other than cancer and recent changes in healthcare priorities necessitate a fresh approach to lymphoedema service provision.

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The Management of Lymphoedema in Advanced Cancer and Oedema at the End of Life

Date of Publication: 2010
Author/s: Jan Simmons, Vaughan Keeley, Jacky Frisby, Steve Norton, Anna Towers, Andrea Cheville, David Keast

Description:
The position document aims to provide the clinician with approaches to the management of oedema and its associated complications at the end of life. Specialist therapeutic interventions, embedded in the pallative care ethos of multidisciplinary care to reduce symptoms and associated psychological distress, improve quality of life and reduce attendant risks, are defined.

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Best Practice for the Management of Lymphoedema

Date of Publication: 2006
Author/s: ILF

Description:
Lymphoedema is a progressive chronic condition that affects a significant number of people and can have deleterious effects on patients’ physical and psychosocial health. Even though it may be greatly ameliorated by appropriate management, many patients receive inadequate treatment, are unaware that treatment is available or do not know where to seek help. Several recent systematic reviews have highlighted the distinct lack of evidence for the optimal management of lymphoedema. By presenting a model for best practice in lymphoedema in adults, this document aims to raise the profile of the condition and improve the care that patients receive. (Also available in Japanese)

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Compression Hosiery in Lymphoedema

Date of Publication: 2006
Author/s: CJ Moffatt, M Clark, G Krimmel, H Partsch, M Jünger , DC Doherty, PA Morgan

Description:
This issue, Compression Hosiery in Lymphoedema, recognises the central role that compression hosiery plays in the treatment of lower limb lymphoedema. The guidance provided is a synthesis of work undertaken by the Lymphoedema Framework with patients, clinicians and industry.

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Consensus Statement on the Chronic Oedema –Lymphoedema Interface

Date of Publication: June 2015
Author/s: National Lymphoedema Partnership

Description:
Consensus Statement on the Chronic Oedema –Lymphoedema Interface (National Lymphoedema Partnership, 2015)

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Care of Children with Lymphoedema

Date of Publication: 2010
Author/s: Isabelle Quéré, Christine Moffatt

Description:
This focus document provides practitioners with an overview of childhood lymphoedema: the causes, presentations, and approaches to management.

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